In Latvia, a unique event is taking place that convenes patients, their relatives, healthcare professionals, policymakers, and other interested parties focused on rare diseases. This year, international guests will share their expertise and insights, discussing vital issues in the realm of rare diseases, highlighted by Dr. Madara Auzenbaha, the head of the Rare Diseases Coordination Center at the Children's Hospital.

Among the speakers are Biruta Tumiene from Lithuania, who will provide insights into the implementation and results of the national rare disease plan, and Ariane Weinman, a policy expert from the European Organization for Rare Diseases (EURORDIS) from France. The forum will also feature participation from the United Kingdom, where Victoria Hedley, co-lead of the Rare Disease Research Excellence Centre at Newcastle University and a rare disease policy maker, will contribute remotely.

This forum underscores the importance of collaboration across borders in the management of rare diseases and marks a significant step in enhancing awareness, research, and policy formulation. With the participation of diverse stakeholders, the event aims to foster dialogue and develop strategies to better support patients and families affected by rare conditions.