Rare liver diseases: why are there no symptoms?
The article discusses a recent international conference focusing on rare liver diseases and highlights the importance of collaboration among European experts in treating these conditions.
The article covers an international scientific conference attended by doctors from various Lithuanian healthcare institutions, focusing on rare liver diseases. A key speaker, Professor Ansgar Wilhelm Lohse, highlighted the role of the Kaunas Clinics as the only center in Lithuania that is part of the European Reference Network for Rare Liver Diseases (ERN-RARE-LIVER). This membership allows for discussions of complex patient cases with experts from European countries and the implementation of modern, evidence-based treatment strategies.
Professor Juozas Kupčinskas, head of the Gastroenterology Clinic at Kaunas Clinics, emphasized the significance of this collaboration, particularly for managing rare autoimmune or genetic liver diseases such as primary biliary cholangitis, primary sclerosing cholangitis, Wilson's disease, and autoimmune hepatitis. These conditions can often remain asymptomatic for long periods, making timely treatment crucial as they can progressively damage the liver.
The emphasis on evidence-based approaches to treatment underscores the importance of knowledge sharing and collaboration among healthcare professionals in Europe. As rare liver diseases can be challenging to diagnose and manage, the insights gained from such conferences can improve patient outcomes not only in Lithuania but across the continent, establishing a more comprehensive network for rare disease management.