Two sisters diagnosed with cone and rod dystrophy use special filters to avoid light and further their studies: 'They are very independent girls'
Two sisters from Baeza, Ecuador, diagnosed with visual disabilities, use special filters to help them navigate their studies and daily lives.
Samara, 19, began avoiding sunlight as an infant, prompting her mother Ana Marianela to investigate her strange behavior. Despite being just nine months old when she started showing signs of discomfort in bright light and difficulties in seeing objects, it wasn't until later that a diagnosis confirmed her visual impairment. The family, who originally lived in Guayaquil, had moved to Baeza in search of better opportunities for their children's education, grappling with the challenges posed by their disabilities.
Samara's sister, Sofรญa, shares a similar condition, with both sisters affected by a 60% visual impairment. Their family faces challenges in seeking external medical opinions about their condition, highlighting the difficulties faced by those needing specialized care in rural Ecuador. With the use of special light-filtering glasses, the girls strive to maintain their independence and continue their studies, proving resilient against the limitations imposed by their disabilities.
The situation reflects broader challenges within the healthcare system in Ecuador, particularly for those in remote areas who require specialized treatment. The family's commitment to finding solutions for their daughters suggests a push towards advocating for better access to healthcare resources and support for disabled individuals. As they navigate these challenges, they serve as inspiring examples of determination and the quest for independence despite significant obstacles.