Two sisters diagnosed with cone and rod dystrophy use special filters to avoid light and further their studies: 'They are very independent girls'
Two sisters from Baeza, Ecuador, diagnosed with visual disabilities, use special filters to help them navigate their studies and daily lives.
He was given 6 months to live, made a wish list, and died at 24: today his mother is fulfilling the pending dreams
A mother is honoring her late son’s wish list after he was diagnosed with a terminal condition and passed away at just 24 years old.
Living with disability as a child tough — Teenager
14-year-old Praise Adams shares her experiences and perspectives on living with muscular dystrophy, emphasizing her optimism and resilience.
REVIEW: When You See Simon, You Feel Like a Lucky Charm and a Guilty One
The play 'We Will See Simon!' at the Estonian Youth Theatre adeptly tackles the challenges faced by disabled individuals through a vibrant adaptation of a New Zealand novel.
Scammer creates similar PIX keys to divert donations intended for the treatment of a 6-year-old child
A family in Sorocaba, Brazil, fell victim to a scam diverting donations meant for their son's costly treatment for Duchenne Muscular Dystrophy.
Young man with a rare disease passes in Law at UFPR and fights for the inclusion of people with disabilities: 'Fighting for myself and for others too'
Charleston Júnior, a 21-year-old diagnosed with Duchenne Muscular Dystrophy, has been accepted into Law School at the Federal University of Paraná and is determined to advocate for the rights of people with disabilities.
Getter Meresmaa's debut performance presents the story of a young person with special needs
Getter Meresmaa's debut performance "See You Again, Simon!" focuses on the life of a teenager named Simon with Duchenne muscular dystrophy, based on a true story by New Zealand author David Hill.
Sudanese family struggles to treat their son suffering from a rare genetic disease
The article highlights the struggles of a Sudanese family to obtain gene therapy for their son Imad, who is affected by Duchenne muscular dystrophy, a severe rare genetic disorder in children.
You can't avoid burning out, but I no longer address every piece of advice and try to live normally, says the mother of a daughter with muscular dystrophy
Jindra Landová, mother of a daughter diagnosed with muscular dystrophy, discusses the challenges of parenting and the balance between therapies and living a normal life.