Mar 2 • 12:49 UTC 🇫🇮 Finland Ilta-Sanomat

Rare disease prevents Saimi Hoyer from hugging people - "It feels bad"

Entrepreneur Saimi Hoyer is forced to avoid human contact during the influenza outbreak due to a rare disease called CVI.

Entrepreneur Saimi Hoyer is currently facing challenges due to a rare genetic condition known as CVI, which makes her highly susceptible to recurrent bacterial infections. With Finland experiencing a severe wave of influenza, she must exercise extreme caution to avoid any contact with others. Hoyer shared her struggles on Instagram, expressing her desire to connect with people, especially after speaking engagements, where hugs and close interactions are the norm. However, during this epidemic, she finds it necessary to maintain distance, which is emotionally difficult for her.

The impact of her condition goes beyond personal discomfort; it highlights the broader issues of living with a chronic illness, especially in a time when social norms encourage closeness and physical interaction. Hoyer's transparent discussions about her health not only raise awareness of CVI but also shed light on the emotional strain faced by individuals with health vulnerabilities during public health crises. Her social media posts often include images of herself in a hospital setting, symbolizing the reality of living with a chronic, incurable condition.

Hoyer's situation emphasizes the importance of understanding and compassion towards those with health conditions, particularly during outbreaks when everyone is encouraged to stay connected. It serves as a reminder that the need for social distancing can be particularly painful for those who depend on human connection for their emotional well-being. The ongoing situation challenges societal perceptions of health and connection, navigating the fine line between normalcy and the realities of chronic illness.

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