On World Rare Disease Day, a Brazilian psychologist reflects on her journey after being diagnosed with Amyotrophic Lateral Sclerosis (ALS) five years ago. This event brings attention to rare diseases, which may affect fewer individuals, yet collectively impact millions worldwide. Patients often face significant hurdles, including late diagnosis and limited access to treatment, highlighting the importance of a dedicated day for awareness and advocacy.

The psychologist, based in Caçapava, São Paulo, has turned her personal struggle with ALS into a source of strength, continuing her professional endeavors while also reaching out to assist other patients grappling with rare conditions. Her work not only raises awareness but also provides emotional and psychological support to others facing similar challenges, emphasizing the power of resilience in the face of adversity.

The significance of this story lies in its inspiring message on World Rare Disease Day, illustrating how individuals can transform their personal challenges into opportunities for helping others. It also underscores the critical need for broader societal awareness and action regarding the issues faced by rare disease patients, ultimately contributing to a movement aimed at improving care and support for those affected across the globe.