Women with lipedema have late diagnosis and difficulty accessing treatment
Women in Brazil with lipedema face significant barriers in obtaining proper diagnosis and treatment despite assurances from the Ministry of Health.
In Brazil, women suffering from lipedema encounter numerous challenges in securing timely and adequate diagnosis and treatment, despite official claims from the Ministry of Health that care is available through the Sistema Único de Saúde (SUS). Many affected individuals report inconsistencies in patient management, with no standardized clinical protocols and a lack of structured care pathways leading to difficulties in accessing necessary therapies and surgeries. This situation affects patients across both public and private health systems, leaving many without proper medical support.
A recent study published in the journal Nature has highlighted the chronic and incurable nature of lipedema, while underscoring that current treatment strategies—such as diet modification, physiotherapy, and surgical interventions—are only effective in symptom management. This comprehensive review of the existing scientific literature indicates that, without a cure, patients are left to manage the condition with limited options, and the absence of coordinated care exacerbates their suffering and health outcomes.
Additionally, the research brings attention to the significant limitations inherent in surgical treatments, like bariatric surgery, which may not always effectively address the underlying issues associated with lipedema. Such findings call for more robust public health policies, improved clinical training, and greater awareness of lipedema among healthcare providers to ensure that women have equitable access to proper care and resources throughout Brazil.