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32 stories
🇧🇷 G1 (PT)
National & Local

Fiocruz starts studies with therapy for Spinal Muscular Atrophy; costs may reach 25% of current value

Fiocruz has initiated its first clinical study for a gene therapy aimed at treating severe Spinal Muscular Atrophy (SMA) in Brazil, potentially reducing treatment costs significantly.

Feb 26 • 18:00 UTC
🇳🇬 Punch
National & Local

NAFDAC warns of fake expiry dates on baby formula in Kaduna

NAFDAC has issued a warning regarding tampered SMA Gold First Infant Milk Formula detected in Kaduna, raising concerns over consumer safety.

Feb 22 • 18:42 UTC
🇬🇧 Mirror
National & Local

SMA urgent 'act now' plea to government to save more babies from disability

A UK parliamentary committee chair has urged the government to include spinal muscular atrophy testing in the newborn heel prick test after delays in implementing curative treatments.

Feb 15 • 17:00 UTC
🇬🇧 Mirror
National & Local

Jesy Nelson makes honest admission about twins' future amid heartbreaking health ordeal

Jesy Nelson expresses her emotional journey following her twins' Spinal Muscular Atrophy diagnosis and her advocacy for increased newborn screenings for the condition.

Feb 14 • 12:17 UTC
🇬🇧 Mirror
National & Local

Jesy Nelson's SMA petition smashes 100k signatures in ONE DAY as she backs Mirror campaign

Jesy Nelson's petition for newborn screening for spinal muscular atrophy achieved 100,000 signatures in a day, gaining parliamentary attention.

Feb 13 • 18:48 UTC
🇬🇧 Mirror
National & Local

‘Every moment matters to SMA babies - we must act now to change their futures’

Charity leader Giles Lomax advocates for mandatory spinal muscular atrophy testing for newborns in the UK to improve early diagnosis and treatment options for the disease.

Feb 13 • 18:08 UTC
🇬🇧 Mirror
National & Local

Jesy Nelson left in tears using twins' feeding tubes - 'I don't want to hurt them'

Former Little Mix star Jesy Nelson shares her emotional struggles with feeding her premature twins, expressing fear of hurting them while advocating for SMA screening.

Feb 12 • 14:20 UTC
🇬🇧 Mirror
National & Local

Jesy Nelson petitions Parliament and joins Mirror campaign on SMA babies

Jesy Nelson has launched a petition in Parliament and joined the Mirror's campaign advocating for newborn screening for spinal muscular atrophy (SMA).

Feb 12 • 14:04 UTC
🇬🇧 Mirror
National & Local

Wes Streeting admits 'it's hard to look SMA parents like Jesy Nelson in the eye'

Health Secretary Wes Streeting expresses remorse over the lack of newborn screening for spinal muscular atrophy (SMA) and acknowledges the challenges parents like Jesy Nelson face.

Feb 8 • 11:27 UTC
🇬🇧 Mirror
Life & Tech

Jesy Nelson announces new TV special to continue to campaign for SMA tests at birth

Jesy Nelson has announced a new TV special focused on her campaign for newborn Spinal Muscular Atrophy tests, alongside her Prime Video series.

Feb 5 • 18:15 UTC
🇵🇱 Rzeczpospolita
National & Local

Toxin in Modified Milk for Children. 36 Cases in the UK, Does the Problem Concern Poland?

Nestlé recalled over 60 batches of SMA modified milk due to concerns over a heat-resistant toxin, cereulide, linked to gastrointestinal symptoms, following reports of 36 cases in the UK.

Feb 5 • 10:46 UTC
🇬🇧 Mirror
Life & Tech

Jesy Nelson reveals heartbreak as she was separated from her babies for a week

Jesy Nelson has opened up about the emotional turmoil she faced being away from her newborn twins, Ocean Jade and Story Monroe, after their birth due to their health issues.

Feb 4 • 19:03 UTC
🇬🇧 Mirror
Life & Tech

Jesy Nelson breaks down as she reveals heartbreaking reason behind documentary

Jesy Nelson emotionally discusses the devastating reason for her upcoming documentary, focusing on her life after leaving Little Mix and the diagnosis of her twin daughters with SMA Type 1.

Feb 4 • 18:18 UTC
🇮🇳 Aaj Tak (Hindi)
Life & Tech

An injection worth ₹9 crore... and the battle for Anika's life

Three-year-old Anika Sharma from Indore suffers from a rare disease, SMA Type-2, and her parents are trying to raise ₹9 crore for a potentially life-saving injection.

Feb 4 • 13:21 UTC
🇬🇧 Mirror
Life & Tech

Emotional Jesy Nelson reveals what 'really breaks her heart' about SMA testing

Jesy Nelson expresses her heartbreak over the late diagnosis of her twins with spinal muscular atrophy and advocates for early testing for all UK newborns to improve treatment outcomes.

Feb 4 • 12:49 UTC
🇬🇧 Sky News
Crime & Justice

New batch of Nestle baby formula recalled due to toxin

Nestle has issued a recall for a new batch of SMA baby formula over concerns of a heat-resistant toxin that could cause serious gastrointestinal issues.

Feb 4 • 08:12 UTC
🇬🇧 Mirror
Crime & Justice

Another Nestlé baby formula product recalled over food poisoning fears

Nestlé has announced a recall of its SMA Advanced First Infant Milk due to the detection of a food poisoning toxin, following previous recalls last month.

Feb 4 • 05:46 UTC
🇬🇧 Mirror
Life & Tech

Real reason Jesy Nelson split with Zion Foster just four months after engagement

Jesy Nelson and Zion Foster ended their relationship following the stress from their twin daughters' diagnosis of SMA Type 1.

Feb 3 • 02:33 UTC
🇬🇧 Mirror
Life & Tech

Jesy Nelson's twins praised as 'two little warriors' in fiance's touching poem

Jesy Nelson's fiancé, Zion Foster, honors their twin daughters in a heartfelt poem, calling them 'two little warriors' in their fight against a muscle-wasting disease and criticizes the absence of NHS testing for the condition.

Jan 15 • 18:32 UTC
🇬🇧 Mirror
Life & Tech

Jesy Nelson's fiancé pens heartbreaking letter to ‘warrior’ twins after devastating diagnosis

Zion Foster, Jesy Nelson's fiancé, writes a touching tribute to their twin daughters after they received a devastating diagnosis of SMA, expressing admiration for their strength.

Jan 15 • 12:53 UTC
🇬🇧 Mirror
Life & Tech

Jesy Nelson reveals adorable snap of twins after devastating SMA diagnosis

Singer Jesy Nelson shares a heartwarming photo of her twin daughters following their diagnosis of SMA Type 1, a rare genetic condition that could impact their ability to walk.

Jan 15 • 08:08 UTC
🇬🇧 Mirror
National & Local

NHS newborn test to stop kids being left disabled is ‘no brainer’, expert proves

A Lancet study indicates that not screening newborns for spinal muscular atrophy (SMA) through the NHS heel prick test is detrimental, costing lives and money, prompting calls for a national rollout of a £5 blood test.

Jan 12 • 17:22 UTC
🇬🇧 Guardian
Life & Tech

Calls for SMA screening ignored before Jesy Nelson campaign, say families

Families claim their demands for spinal muscular atrophy (SMA) screening in newborns were overlooked until Jesy Nelson's campaign brought attention to the issue.

Jan 11 • 07:00 UTC
🇬🇧 Mirror
Life & Tech

Jesy Nelson shares adorable video of baby daughter after devastating diagnosis

Jesy Nelson shared a joyful video of her daughter following the heartbreaking diagnosis of her twin daughters with SMA Type 1.

Jan 10 • 09:41 UTC
🇬🇧 Mirror
Life & Tech

Cat Deeley under fire for 'inappropriate' choice of words talking about Jesy Nelson's twins

Cat Deeley faced backlash from a disability advocate for her choice of words when discussing Jesy Nelson's twins diagnosed with SMA.

Jan 9 • 18:13 UTC
🇬🇧 Mirror
Life & Tech

Mother of miracle SMA baby demands easy NHS test to stop more babies being paralysed

Portia Thorman advocates for universal screening to detect spinal muscular atrophy (SMA) in newborns after her son Ezra survived a severe late diagnosis of the disease.

Jan 8 • 19:00 UTC
🇬🇧 Mirror
Life & Tech

Heel prick test for SMA now: Five questions answered about muscle wasting disease

The article discusses the urgent implementation of a heel prick test for spinal muscular atrophy (SMA) to prevent newborns from being left paralyzed due to delayed diagnosis.

Jan 7 • 20:00 UTC
🇬🇧 Mirror
Life & Tech

What is Jesy Nelson's petition and how babies can be saved by 'horrible' disease

Jesy Nelson, after her twins were diagnosed with SMA type 1, is launching a petition for newborns to be screened for the disease.

Jan 7 • 08:03 UTC
🇬🇧 Mirror
National & Local

Nestlé recalls baby formula products over food poisoning fears - full list

Nestlé has recalled certain batches of its SMA baby formula products in the UK due to potential contamination with a food poisoning toxin that can cause severe gastrointestinal symptoms.

Jan 5 • 23:42 UTC
🇬🇧 Mirror
Life & Tech

Jesy Nelson’s twins' heartbreaking condition SMA that means they may never walk

Former Little Mix star Jesy Nelson has disclosed that her twin daughters have been diagnosed with Spinal Muscular Atrophy, a genetic condition that could prevent them from walking.

Jan 5 • 16:16 UTC
🇭🇷 Večernji List
Life & Tech

VIDEO 'Without therapy, they will die': Singer of famous band in tears after shocking diagnosis of her daughters

Jesy Nelson, former member of Little Mix, shares heartbreaking news about her eight-month-old twins who have been diagnosed with spinal muscular atrophy (SMA).

Jan 4 • 17:30 UTC
🇮🇸 Visir
Crime & Justice

The Smá­ríkið Considers a Lawsuit Due to Police Actions

The online liquor retailer Smáríkið is contemplating legal action against the Icelandic government following repeated police closures of its delivery points.

Jan 4 • 16:43 UTC

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