Africa: Breakthrough Sickle Cell Gene Therapy a Distant Hope in Africa
A new gene therapy for sickle cell disease, successful in Western nations, remains unaffordable for most patients in Africa as Uganda begins nationwide newborn screening for the disorder.
Jesy Nelson's SMA petition smashes 100k signatures in ONE DAY as she backs Mirror campaign
Jesy Nelson's petition for newborn screening for spinal muscular atrophy achieved 100,000 signatures in a day, gaining parliamentary attention.
‘Every moment matters to SMA babies - we must act now to change their futures’
Charity leader Giles Lomax advocates for mandatory spinal muscular atrophy testing for newborns in the UK to improve early diagnosis and treatment options for the disease.
Jesy Nelson left in tears using twins' feeding tubes - 'I don't want to hurt them'
Former Little Mix star Jesy Nelson shares her emotional struggles with feeding her premature twins, expressing fear of hurting them while advocating for SMA screening.
Jesy Nelson petitions Parliament and joins Mirror campaign on SMA babies
Jesy Nelson has launched a petition in Parliament and joined the Mirror's campaign advocating for newborn screening for spinal muscular atrophy (SMA).
Will indiscreet actions by the authorities lead to a decrease in newborn vaccinations against tuberculosis?
In Poland, trust in vaccinations has been declining, and recent health ministry actions may further undermine confidence, particularly concerning its new screening test for severe combined immunodeficiency in newborns.
Wes Streeting admits 'it's hard to look SMA parents like Jesy Nelson in the eye'
Health Secretary Wes Streeting expresses remorse over the lack of newborn screening for spinal muscular atrophy (SMA) and acknowledges the challenges parents like Jesy Nelson face.
Is mapping a baby's genetic disease risk a healthcare miracle or a step too far?
The article discusses the implications of newborn genomic testing that reveals genetic disease risks, weighing its potential benefits against ethical concerns and psychological impacts.
Vaccination rules will change. The Ministry of Health reacts after the dismissal of Prof. Ewa Helwich
Following a dispute, Prof. Ewa Helwich was dismissed from her position due to differing views on newborn screening procedures for severe combined immunodeficiency and their implications for vaccination practices.
LIFESAVING INNOVATION: Estonia to mass test for severe genetic disease
Starting in 2026, Estonia will offer cystic fibrosis screening to all children born in the country, enabling early treatment and prevention of organ damage.
NHS newborn test to stop kids being left disabled is ‘no brainer’, expert proves
A Lancet study indicates that not screening newborns for spinal muscular atrophy (SMA) through the NHS heel prick test is detrimental, costing lives and money, prompting calls for a national rollout of a £5 blood test.
Calls for SMA screening ignored before Jesy Nelson campaign, say families
Families claim their demands for spinal muscular atrophy (SMA) screening in newborns were overlooked until Jesy Nelson's campaign brought attention to the issue.
What is Jesy Nelson's petition and how babies can be saved by 'horrible' disease
Jesy Nelson, after her twins were diagnosed with SMA type 1, is launching a petition for newborns to be screened for the disease.
Jesy Nelson demands urgent change after twins' diagnosis as Health Secretary steps in
Jesy Nelson is advocating for newborn screening for spinal muscular atrophy after her twins were diagnosed with the condition, prompting Health Secretary Wes Streeting to take action.